I’m ready for my close up…

Nope, no baby sister yet!  Mom thought she was going on Thursday night or Friday but then my sister told her otherwise.  So now she’s just putzing around doing odds and ends trying to work through the aches of every 8 minutes. 

On the Ari front… I lovvvvve the camera.  We were successful in getting the word out on Angelman Syndrome Awareness Day 07!  WETM TV in Elmira NY did a fun story on AS at my daycare, starting… ME!  I showed the world that great big smile and all my artistic talents.  Momma did a little interview (between contractions).  Not too bad.  The interview lady, miss Ana was very nice and soooo patient. (I wanted to run the interview but momma said I couldn’t).  Miss Sara and Miss Kim were so helpful too.  It’s not every day that we get to kick the kids out of class to have the TV crew there.  I also have to thank Miss Colleen for letting them come and film us.  It was way fun and if you want to see it go to this link:

http://www.wetmtv.com/mediacenter/local.aspx if that doesn’t work go to www.wetmtv.com and then choose videos and then choose "steuben county toddler suffers from rare disorder" video.  Ok I wouldn’t say I’m suffering… cuz I live the glamorous life… but I think it makes for a better headline to get the word out.  Thanks WETM you guys rock!

We didn’t make it to the physical walk a thon cuz mom has been having contractions 8 min apart for ummmm three days now… nope mom says it’s four.  So we had to stay in Corning, but we did get to walk to hokey pokey for ice cream and we got the footage on the TV.  We were thinking of everyone and sending warm weather vibes to you.  We are still taking donations on our website if you want to contribute! 

I think that’s enough excitement for now.  Pretty soon mom will have two blogs to keep up with, maybe I should share mine with my sister for a while, that way mom can get some sleep… nah I will have to share enough with her to start with… ha!

Be nice, give hugs, and smile at strangers… love- Arianna

Angelman Syndrome Awareness Day is May 19th

3 weeks and counting til my little sister gets here.  I’m making momma type fast so she doesn’t forget what to write as she has been forgetting things a lot lately.  First thing’s first we have to give a big ole THANK YOU to Daddy.  He has been housewife extraordinaire lately doing dishes, laundry, the yard work, and the cooking.  Thanks Dad! 

Update on the WALK A THON… if you haven’t had a chance to pitch in go to www.firstgiving.com/ariannasawesomeadventure and join us!  We get the final verdict next Wednesday on whether or not we can go to Philly.  Wouldn’t want our newest star to make an early appearance in an unplanned city- although that would totally show up my superstardom for some time. 

SUPER DUPER SPECIAL shout out to our Legislative Reps: Jim Bacalles and George Winner for getting the State Legislature to pass our annual Angelman Syndrome Awareness Day for Saturday May 19^th, 2007.  It was passed 1 year –to the day- of my diagnosis.  Momma sent out a press release to the local news orgs, we’ll see if anyone bites, if not we’ll spread the word ourselves!

Mother’s day is this weekend, and we need to take a moment to thank all those special folks in our lives that do the Mom thing. These people can be male or female as sometimes “Mom” is filled in by surrogates who do the job just as well!  How are we going to celebrate… well we thought us girls would go out and color the world with pansies!  AKA we’re going flower shopping with Nana then we get to garden… I’m all about the mud and water.  Can you say big ole mess!

I’m totally enjoying this super weather.  I have gotten to play in my bouncy house (thanks Bubbe and Grandpa!) with dad and it is super cool.  I have also had a chance to play in the back yard where I like to run off on momma (since she can’t catch me) and hide behind the shed.  The front porch is great too for socializing with the neighbors and laughing at all the people who walk by.

Grandpa Bob opened his pool last weekend, but I guess it was too cold to get in.  Says who?  It’s never too cold for a dip!  But alas I will have to wait till momma says it’s ok.  I just can’t wait to show off all the new tricks Miss Lisa (my swim teacher) has shown me.  Did I mention there are way cute lifeguards at the pool who just love to say hi to me?

Finally I have to give a hand to Miss Maggie Hickey, who threw the golden temper tantrum last week.  Alas, good Mag I have taught you well! You go girl!

So who knows when I’ll get to post again, since mom is crazy.  Feel free to write and be sure to know that I will send the mother of all press releases out via the blog when the newest Rock Star of the family gets here.  Happy Spring, Happy Mother’s Day, but most of all spread the news about ANGELMAN SYNDROME AWARENESS DAY!

Peace- Arianna E